Living with haemophilia

Acquired haemophilia – Jenny’s story

11 April 2024

Jenny shares her story of how she discovered she had the acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.

Growing older with haemophilia ~ Jason

19 July 2023

Advances in haemophilia treatment and care over the last few decades have meant that there has been overall increase in…

Overcoming challenges – Adam’s story

19 July 2023

Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at…

Haemophilia – when your daughters bleed too

19 July 2023

Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to…

Sharron – A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia

19 July 2023

Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it…

Jane’s story – genetic testing for haemophilia

19 July 2023

One of the main reasons women choose to have genetic testing for the altered gene for haemophilia is to find…

Poppa and Roman share a special bond

19 July 2023

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

Living like a Swede

19 July 2023

Amanda (Mindi) Palm is an Australian community member and blogger who moved to Sweden for a few years. She explains…

Ben – a father’s perspective

19 July 2023

Ben and Kylie have a son, Ryder aged 4 with severe haemophilia A. Being the father of a small boy with…

Accessing treatment – Leah’s story

19 July 2023

What does access to the latest evolution of haemophilia treatments mean for a family? Leah shares her experience about new…

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