Here are notices of events and activities of interest to people in Queensland with a bleeding disorder. We also post updates on research, treatments and supports that relate to inherited bleeding disorders. If an event or new item you are seeking is not listed here, please let us know so we can consider uploading it here for the interest oif members.
Posted: Friday, 13 November 2020
An update from HFA about the arrangements to access Hemlibra®, a treatment for haemophilia, and HFA’s ongoing work to advocate for new treatments.
Posted: Saturday, 26 September 2020
HFQ welcomes the announcement by Federal Minister for Health, The Hon. Greg Hunt MP, that they will now fund a new treatment for patients with severe Haemophilia A called Hemlibra (emicizumab).
Prior to this, Hemlibra was only available to patients via clinical trail or compassionate access, but the new funding means that every individual with severe FVIII deficiency will have the option to switch to Hemlibra or remain on their current treatment.
Posted: Wednesday, 1 July 2020
The National Blood Authority (NBA) announced funding for extended half life clotting factor products (EHL's) yesterday.
Posted: Thursday, 25 June 2020
Getting older with a bleeding disorder? Life can get a bit complicated! HFA have launched a Getting Older Info Hub and Report to help you navigate the journey
Posted: Thursday, 9 April 2020
Haemophilia Foundation Australia and The World Federation of Hemophilia have recently published updates related to COVID-19 of interest to people with bleeding disorders.
Posted: Friday, 27 March 2020
Dr Jane Mason has distributed an update from the Queensland Haemophilia Centre at RBWH on the impact of COVID-19 and how they will provide ongoing support. The information is relevant and applicable to the Queensland Haemophilia Centre at QCH as well.
Posted: Wednesday, 26 February 2020
HFQ has been monitoring the latest information on the coronavirus called COVID-19 (2019-nCoV) with respect to any impact on the bleeding disorders community.
Posted: Friday, 1 November 2019
The Annual General Meeting for HFQ was held on Tuesday 1 October 2019 and the Annual Report was presented to members.