Newly Diagnosed

Haemophilia a guideHaemophilia: A GUIDE for parents of A NEWLY DIAGNOSED child

A comprehensive guide for parents. It aims to help parents understand all the issues they will encounter when their child is diagnosed with haemophilia.  It also covers growth and development, parenting a child with haemophilia, exercise and sport. Information on support and contact details of services are also included. (Oct 2017)



Bleeds - Emergency checklist  80KB

Recognising a bleed 587KB

Title pages; how to use this guide 308KB

Chapter 1 - Your child has haemophilia 3.5MB

Chapter 2 - Understanding haemophilia 3.8MB

Chapter 3 - Bruises and bleeds  1.7MB

Chapter 4 - Treatment and health management  3.8MB

Chapter 5 - Growing up with haemophilia  3.4MB

Chapter 6 - Movement, exercise and sport  2.4MB

Click here to find contact details of Haemophilia Treatment Centres (HTCs)

Click here to find the contact details of state/territory and national Haemophilia Foundations

Chapter 8 - Glossary  84KB

Chapter 9 - More information  58KB

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This education resource was funded by the donations of many individuals to Haemophilia
Foundation Australia and an education grant from Pfizer.

Date last reviewed: 21 December 2020
Important Note: This information was developed by Haemophilia Foundation Australia for education and information purposes only and does not replace advice from a treating health professional. Always see your health care provider for assessment and advice about your individual health before taking action or relying on published information.
This information may be printed or photocopied for educational purposes.