Representing the Queensland
bleeding disorders community

Haemophilia Foundation Queensland

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Women bleed too survey

What are the experiences of women and girls with bleeding disorders when they speak up for themselves in health care...

International Women’s Day 2026

8 March is International Women's Day. Help us balance the scales - let's raise awareness about bleeding disorders testing and...
Rare Disease Day

Rare Disease Day 2026

28 February is Rare Disease Day – a worldwide event to raise awareness and generate change for people with rare...

Support Groups

Find local support groups in your area

Apr
17
Jun
15
Jul
28

Looking for another foundation?

Click on the map to navigate to the site of each state's foundation.

Alternatively, click here to visit Haemophilia Foundation Australia.

Personal stories
Young pregnant woman talking to doctor - New Africa for Freepik

VWD: Your voice matters – Sophie’s story

Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others...

Steve on gene therapy for haemophilia

Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life...
Javonte and Simoni talk about growing up with a rare bleeding disorder

Simoni and Javonte – growing up with a rare bleeding disorder

Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia...

Carly’s story: Life with Glanzmann thrombasthenia

Carly is 22 and talks about living with Glanzmann thrombasthenia as a young person and the value of support, living...
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