Items tagged 'February 28, 2024'

Growing up with Glanzmann thrombasthenia

28 February 2024

Personal stories, Rare bleeding disorders
glanzmann-thrombasthenia, Rare Disease Day

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Living with Glanzmann thrombasthenia

28 February 2024

Personal stories, Rare bleeding disorders
glanzmann-thrombasthenia, women

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

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Haemophilia Foundation QLD

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Haemophilia Foundation Queensland acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.