Items tagged 'Rare Disease Day'

Growing up with Glanzmann thrombasthenia

28 February 2024

Personal stories, Rare bleeding disorders
glanzmann-thrombasthenia, Rare Disease Day

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Living life actively with VWD

19 July 2023

Personal stories, Rare bleeding disorders, Von Willebrand disease
Living with VWD, Rare Disease Day

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

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Haemophilia Foundation QLD

Created with Heartburst

Haemophilia Foundation Queensland acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.