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Newly diagnosed with haemophilia

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Brothers. Photo by Vika Glitter for Pexels

Your child has haemophilia. These four words have most likely echoed through your mind over and over again since your child was diagnosed.

There are so many things to know about haemophilia – what it is, what the symptoms are, how it’s treated and who’s there to help.

Here’s three things you need to know right now:

  1. Your child will be okay.
  2. With appropriate treatment and care, haemophilia is manageable.
  3. Your child will have a normal life expectancy and will be able to do most things that other children their age can do.

You will need to make some adjustments to your life but most things you do with your family will remain the same. While haemophilia can’t be ignored, it does not have to rule your life – or your child’s. Remember always to treat your child as a little boy or girl first, and a child with haemophilia second.

Rest assured that as your child grows, so will your – and your child’s – understanding of haemophilia and your confidence in how to manage it.

Your Haemophilia Treatment Centre (HTC) is always available to offer advice whenever you need it. Haemophilia Foundations can also provide information and support and connect you to other parents. You are not on your own.

Date last reviewed: 1 October 2017

Important Note: This information was developed by Haemophilia Foundation Australia for education and information purposes only and does not replace advice from a treating health professional. Always see your health care provider for assessment and advice about your individual health before taking action or relying on published information. This information may be printed or photocopied for educational purposes.

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