Selected resources including high quality and relevant information for Australians with bleeding disorders affected by hepatitis C:
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New hepatitis C treatments
- Hep C treatments (HFA)
- Australian recommendations for the management of hepatitis C virus infection: a consensus statement – medical information about hepatitis C treatment
Hepatitis C and Bleeding Disorders
- People with bleeding disorders and hep C: a fact sheet for general practitioners. (AHCDO; HFA, Aug 2017)
- My choice to tell – at work. Advice on workplace issues including when you need to tell people, work safety and privacy. Tips on ways to tell people. (HFA, May 2009)
- My choice to tell – family, friends, new partners. Discussion about the questions that come up when disclosing to family, friends and new partners: what might their reaction be, tips on how to prepare to tell them, conversation starters, telling new partners or children (HFA, May 2009)
Read about the experiences and personal stories of people with bleeding disorders and hepatitis C in Australia:
- Hepatitis C – my story – the personal stories of Australians with haemophilia and hepatitis C
- Summary – “A double whammy” report – revised (HFA, Jan 2008) – summary of HFA needs assessment, including quotes and stories
- Full Report – “A double whammy”: living with a bleeding disorder and hepatitis C – HFA needs assessment report that includes quotes and stories from people with bleeding disorders affected by hepatitis C and recommendations for the HFA hepatitis C strategy (HFA, Oct 2007)
Hepatitis C
- Hepatitis C – general information about hepatitis C for adult Australians (Hepatitis Australia)
- Hepatitis C treatment (Hepatitis NSW)
- Australian recommendations for the management of hepatitis C virus infection: a consensus statement
Hepatitis C Magazines/ Cartoons
- Transmission [ISSUU] – a cartoon-style magazine with stories and information about hepatitis (Hepatitis NSW)
Hepatitis C/HIV co-infection
- HIV and hep C coinfection – introductory information on HIV and hepatitis C co-infection (Hepatitis NSW)
Liver health
- Liver health – information on what your liver does and how hepatitis C affects your liver (Hepatitis Australia)
Telling others
- My choice to tell – at work. Advice for people with bleeding disorders on workplace issues including when you need to tell people, work safety and privacy. Tips on ways to tell people. (HFA, May 2009)
- My choice to tell – family, friends, new partners. Discussion about the questions that come up when people with bleeding disorders disclose hepatitis C to family, friends and new partners: what might their reaction be, tips on how to prepare to tell them, conversation starters, telling new partners or children (HFA, May 2009)
- My Choice, My Rights: Disclosure, anti-discrimination and health complaints information for people with hepatitis C – information to help you make decisions that are right for you about telling others (Hepatitis Australia, 2014).
Hep C tests
Discrimination
- My Choice, My Rights: Disclosure, anti-discrimination and health complaints information for people with hepatitis C – Everyone has the right to be treated fairly and with respect. This provides information on how to complain if you think you have been discriminated against. (Hepatitis Australia, 2014)
Finances
- Superannuation and insurance for people with bleeding disorders and hepatitis C, national edition (September 2007) – John Berrill, Maurice Blackburn Cashman
Australian Hepatitis Organisations
National and state/territory hepatitis organisations provide support and high quality information on hepatitis C:
- Hepatitis Australia
- Hepatitis ACT
- Hepatitis NSW
- NTAHC (Northern Territory AIDS and Hepatitis Council)
- Hepatitis Queensland
- Hepatitis SA
- Red Thread (Tasmania)
- LiverWELL (formerly Hepatitis Victoria)
- Hepatitis WA
- ASHM – peak Australasian organisation providing information and education on hepatitis C to the workforce
NB We provide these links as a service to the haemophilia community. As web sites can change or should you find a site to be no longer active please notify [email protected]. Haemophilia Foundation Australia is not responsible for the content of any external web sites. The featuring of a site on this page is not an endorsement by HFA of the information or views expressed therein.