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Items tagged 'personal-stories'

Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base.
Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder. 

‘I felt like I had won a million dollars.’ What is it like to be cured of hepatitis C after…

* Jake is not his real name ‘Now that my liver is working better, everything is better.’ Curing hepatitis C…

Adam, Alan and Cassie talked to HFA about their experiences at the Melbourne Conference in August 2023. It was a great opportunity for young people with bleeding disorders to catch up with each other and hear the very latest information from the experts.
Jack talked to HFA about travelling overseas and managing his haemophilia for some amazing trips!

The importance of our camps for children and families cannot be underestimated. At these camps, children connect with others going…

David is an Australian community member. He spoke with Suzanne O’Callaghan from HFA about his experience of treatment with one…

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