Carly is 22 and talks about living with Glanzmann thrombasthenia as a young person and the value of support, living your life, and putting your health first.
Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base.
Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.
Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
