Haemophilia: A GUIDE for parents of A NEWLY DIAGNOSED child
A comprehensive guide for parents. It aims to help parents understand all the issues they will encounter when their child is diagnosed with haemophilia. It also covers growth and development, parenting a child with haemophilia, exercise and sport. Information on support and contact details of services are also included. (Oct 2017)
Bleeds – Emergency checklist card
Steps on what to do if your child has symptoms that concern you.
Recognising a bleed card
A checklist of what to look for to recognise if your baby or small child is having a bleed.
Title pages; how to use this guide
The title page and acknowledgements, along with instructions on how to use this guide.
Chapter 1 – Your child has haemophilia
The first things parents need to know when their child is diagnosed with haemophilia:
Chapter 2 – Understanding haemophilia
The basics about haemophilia for you and your child:
Chapter 3 – Bruises and bleeds
Understanding the signs and symptoms of haemophilia in a small child and what to do about them:
Chapter 4 – Treatment and health management
Explaining what treatment and care for a child with haemophilia involves:
Chapter 5 – Growing up with haemophilia
How can you support your child in their development as they grow up?
Chapter 6 – Movement, exercise and sport
The benefits of physical activity for children with haemophilia and how to exercise safely.
HTC and Foundation contact details
Chapter 8 – Glossary
Wondering what the terms and abbreviations mean? This glossary explains them in plain language
Chapter 9 – More information
References and further reading
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This education resource was funded by the donations of many individuals to Haemophilia
Foundation Australia and an education grant from Pfizer.