GETTING OLDER WITH A BLEEDING DISORDER: NEEDS ASSESSMENT REPORT – MAY 2020
The Haemophilia Foundation Australia (HFA) report on the needs of older people with bleeding disorders into the future, with recommendations. The report gives the findings from the HFA consultation with community, health professionals and other experts and agencies. It also includes the results from the HFA Getting Older Community Survey and the PROBE Australia Study.
Download the full report PDF, 5.5MB (large file)
Revised with minor corrections, November 2023
SECTIONS
Preliminary pages and contentsCover, publication details, acknowledgements, contents pages, abbreviations used in the report |
Executive summary and recommendations |
1. IntroductionAbout the needs assessment, why it was needed, the approach used, the Advisory Group and the data collection |
2. About bleeding disordersTypes of bleeding disorders, the age distribution of bleeding disorders in Australia, treatment and comprehensive care |
3. Literature reviewA review of the literature related to getting older with a bleeding disorder and its impact on health, wellbeing, social and financial issues, and issues for partners, family and carers |
4. MethodologyAn overview of the methods used for data collection: interviews, community forums, consultation with state/territory Haemophilia Foundations, the HFA Getting Older Community Survey, the PROBE Australia Study |
5. Summary findingsA summary of the findings from the data collection: interviews, community forums, consultation with state/territory Haemophilia Foundations, the HFA Getting Older Community Survey, the PROBE Australia StudyDownload PDF, 1.3MB |
6. Discussion and what will helpA discussion of the findings and what will help into the future. Includes the aspirations and goals of older people with bleeding disorders, issues relating to their health, wellbeing and quality of life, transport, treatment and care services, aged care and disability services, working, travel, finances, future planning, information and education.Download PDF, 770KB |
7. The way forwardA summary of the conclusions and how to move forward with them |
8. ReferencesThe references used in the report |
Appendix 1 – Getting Older Community Survey findingsA more detailed report on the findings from the HFA Getting Older Community Survey |
Appendix 2 – PROBE Australia Study findingsA more detailed report on age-related findings from the PROBE Australia Study, February 2020. Revised Nov 2023. |