Home  >  Bleeding disorders  >  Living with a Bleeding Disorder  >  Personal Stories  >  Living with haemophilia

Living with haemophilia

Dawn Rotellini shares her experience being diagnosed, and why it is so important to advocate for women and girls with bleeding disorders. She also gives her top three tips for other women and girls advocating for themselves.
Neill shares his experience growing up with haemophilia in the 1950s and 60s, changing treatments, building a career, travelling, and living a full life
Dom shares his experience of receiving gene therapy treatment for haemophilia A
Neil shares his experience of living with severe-presenting haemophilia A, and how he continues to live well as he gets older
Cassie talks about raising a young family with an extra challenge - her son Noah has haemophilia B
Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis
Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life
'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia
Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base.
Skip to content