News & Stories Steve on gene therapy for haemophilia 26 March 2026 Gene therapy, Haemophilia, New treatments, Personal stories Gene and emerging therapies Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life Read more
News & Stories Simoni and Javonte – growing up with a rare bleeding disorder 26 February 2026 Growing up with a bleeding disorder, Haemophilia, Personal stories, Von Willebrand disease, Young people interview Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia Read more
News & Stories Telling daughters: Zev’s story 26 August 2025 Growing up with a bleeding disorder, Haemophilia, Parents & families, Personal stories 'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia Read more
News & Stories Paul talks about his career 12 June 2024 Haemophilia, Personal stories career Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base. Read more
News & Stories Jason – Growing older with haemophilia 19 July 2023 Getting older, Haemophilia, Personal stories Getting Older, Living with haemophilia Jason shares his story of growing up with haemophilia and the very different story he was told as a teenager Read more
News & Stories Overcoming challenges – Adam’s story 19 July 2023 Haemophilia, Personal stories, Young people Living with haemophilia Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at… Read more
News & Stories Haemophilia – when your daughters bleed too 19 July 2023 Haemophilia, Personal stories, Women & girls Women Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to… Read more
News & Stories Sharron – A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia 19 July 2023 Haemophilia, Personal stories, Women & girls Women Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it… Read more
News & Stories Jane’s story – genetic testing for haemophilia 19 July 2023 Haemophilia, Personal stories, Women & girls Women One of the main reasons women choose to have genetic testing for the altered gene for haemophilia is to find… Read more
News & Stories Poppa and Roman share a special bond 19 July 2023 Haemophilia, Parents & families, Personal stories Parents and families Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much…. Read more
