News & Stories Michelle – Her journey to diagnosis 16 April 2026 Haemophilia, Personal stories, Women & girls WHD2026 Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis Read more
News & Stories VWD: Your voice matters – Sophie’s story 7 April 2026 Family Planning and Pregnancy, Personal stories, Von Willebrand disease, Women & girls Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others Read more
News & Stories Rebecca’s story 21 June 2025 Family Planning and Pregnancy, Personal stories, Women & girls Rebecca is a haemophilia carrier and recently delivered a baby boy up north in regional north Queensland. When did you… Read more
News & Stories Shauna Adams – managing type 3 VWD 19 July 2023 Personal stories, Von Willebrand disease, Women & girls Living with VWD This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today…. Read more
News & Stories Susie – living with type 1 von Willebrand disorder 19 July 2023 Personal stories, Von Willebrand disease, Women & girls Living with VWD, Women I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this… Read more
News & Stories Haemophilia – when your daughters bleed too 19 July 2023 Haemophilia, Personal stories, Women & girls Women Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to… Read more
News & Stories Haemophilia – do you catch it? 19 July 2023 Personal stories, Women & girls Women An Australian bleeding disorders community member tells her personal story. I have lived my whole life surrounded by haemophilia. My… Read more
News & Stories Susie ~ Disclosure and telling others 19 July 2023 Employment, Personal stories, Telling others, Von Willebrand disease, Women & girls Women Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her child has VWD type… Read more
News & Stories Sharron – A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia 19 July 2023 Haemophilia, Personal stories, Women & girls Women Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it… Read more
News & Stories Jane’s story – genetic testing for haemophilia 19 July 2023 Haemophilia, Personal stories, Women & girls Women One of the main reasons women choose to have genetic testing for the altered gene for haemophilia is to find… Read more